Showing posts with label manchester hospital. Show all posts
Showing posts with label manchester hospital. Show all posts

Sunday, 7 June 2009

6th Months after the switch on

6th Months after the switch on

For those who have been waiting to hear about my 6th months review. It have been an interesting 3 months since I last had my tuning in Manchester in March. I had a lot of trouble with transferring from Manchester to Southampton as I was moving down south with Giles. Although I did noticed that my low pitches were a bit down and tried to contacted the Southampton to arrange an appointment but Manchester did not send the transfer form to them. I did not know why but I went to complain to Manchester and demand that they would get this fixed out. Thankfully, they have sent the disc to Southampton and arranged an appointment for my 6th months reviewing.

Anyway, after I have looked at the hearing graph and compared the previous graphs. I was right. My low pitches have fainted away. I was a little disappointed with this as I was trying to get this fixed out before my 6th month review but what can I do? Anyway this is my result.

The tests was interesting enough and I was amazed that my lipreading skill and listening together have improved up to 81% from 76%and non lipreading 7 listening have increased 64% from 52% and noisey background which I have not done before is 32% . In all these tests, I was listening for the words and context for me to be able to follow what was being said. It was kinda different from Manchester because I was in a room by myself looking at the window but could not see through it as it was black. A person could see me from another room. It was kinda scary. I was to listen to the sentences and repeat them all as much as I can. Few of them I couldn't understand but I said what I think it was being said.

I was told that my next appointment will be in 6 months. I don't think so!!! I will notice my low pitch will decreased again like it did at the beginning and I will get that sound level nice and smooth. I will get this fixed out.

It is really dificult to know what is the loudest of a single beep even though I knew the difference between the low and high pitch. But what is the loudest? The staff said that I would find it like a headaches. I think I need to contact the clinic again and get this sort out. I was there for over 2hrs and I was shattered to be bother to do more tests. I will let you know how I got on.



Wednesday, 4 February 2009

New sounds

I am well overdue for updating the blog and I am very sorry but what can I said? People are demanding for my attention! Right let me just think back on what have been happening.... mmm ah yes.

It was about two weeks ago I believed, when I went for the hearing therapy to practice on sound and hearing speech. I had to do some book test to see if i follow the reader. I had no problem with this. I used to do this with me mam when I was young. Now then, Karen, my hearing therapy, was gonna make the test tougher for me. She gave me a sheet of paper with words that said.... "In the morning, I...." I had to listen to the rest of the sentence and repeat what was being said. I thought this may be too soon as I had my implant for at least over a month since the switch on. To my surprised, I actually passed my test 5 out of 5. I was amazed. I wish you have seen my face when I did it. I kept wondering how did this happened?

Later that week, Giles came along with me to Poulton-Le-Fylde where I grew up. I remember the village being so quiet, not much traffic around. Just the countryside. Nice and peaceful. All this with my hearing aids and now with the cochlear implant.... Well, its deffo not quiet at all! We walked around through many parks and I was hearing all sort of things that I could not pick my fingers on... What is that noise? I asked Giles. Giles then told me its the birds. We saw two little birds singing their little hearts out. They were really loud! If you are interesting in seeing what we get up to during our trip please click on this link "Our day out"

Another amazing things have happened. I went to the Ear Foundation in Nottingham with the rest of the Bionic Group as well all the other cochlear implantees and wannbe who I have met online for the first time. We have chatted about the experiences we had with the implant and to meet the experts who designed the Advanced Bionic (thats the product that I have) and Phonak who designed the hearing aids, wireless microphone and loop systems. Now then, I was really interested in wireless microphone FM which would be useful for me as I often meet my clients in noisy environment, or go to seminar where there would be so many people about and I need to hear small group of people. I am hoping to get one of those. Its not gonna be cheap!

Another equipment as Katie has mentioned on her blog about using the telephone. We learnt a new way to practice on the phone using the bluetooth ear hook. Its not attached to the mobile phone as the mobile phone do have bluetooth setting in them so this make it practical for people like us to use the phone and actually have conversation with someone. When I tried it out with a guy using another phone in the same room, he asked me to switch to T setting and see if I could pick up what he said. He turned around to avoid me cheating as I may lipsread him. So he asked "What are you having for dinner?" I repeat what he says. I was spotted on. I was amazed. People said that coz I had my implant for over a month and that it was too early for me to pick up anything on the phone. They were amazed that I've managed quite well.

I'm really pleased with the process that I have come so far. People may not realised how much effort we have to listen to everyday sound, the figure of speech and speak clearer as much as possible. I lipsread most of my life and still trying to break that habit. I will get there somehow.

Wednesday, 26 November 2008

A Day before the ops

This is it, guys. 

Its a day before the operation and I'm freaky scared.  People have been so unbelievable supportive.  I never seen anything like this before.  I have thought I would be going through this on my own and I've end up having all my friends, new, old, family and close friends, all gathering up just to be with me. Its amazing. 

Mam finally made peace with me about a week ago. I am so glad about that. I didn't want to regret anything that was being said or done before the ops.  Just let it go and move on.  Tomoz is the day that my life will change.  I will be letting her know whats happening throughout my stay at the hospital. 

This month have been amazing. I have been to Perth in Aus to see my father, Ian as I called him, spent some time relaxing, laughing around. Didn't have a care in the world. Came back feeling like a new woman ready to battle with everyday life and  went to visited my old friends in Blackpool to catch up with them. When I have told them the news about having the implant, they were so excited that they want to see the result.  
I even got to see my lovely nephew, Jim Jam, my brother and his girlfriend, Shelly. (Thanks you for your support.) Jim jam has deffo took everything off my mind. He is quite a character and I am looking forward to hear him to say some  new words.

Meanwhile, I have made new friends, Katie and her boyfriend, Richard and Abi through the Ciug Group for people who have or thinking about getting Cochlear implant. These lovely people came over to my place over the weekend to celebrate my birthday even though my birthday is on the 29th November. Due to the fact that the operation is 2 days before my birthday, I might as well have it a week before.    The time went by so fast and I have enjoyed every minutes being with them. How they make me laugh, cried and most important is ..... .....its being supportive.   Thank you for being there.

Right now, sitting here at my desk,  I am getting some kind of flashback. A flashback from when i was a little girl.  Just starting primary school in a public main school with a small unit for the deaf.  I remember having to wear a massive box that sit by my chest with wires to go into my ears. It was not an ordinary hearing aids that we know of today but the box I had to wear... I made every efforts to hide them, covering it with thick jumper and make me look like i had a pillow underneath it. The funny bit was the fact it was during the spring/summer time.  I guess I was so ashamed of it. I was just a little girl. Just wanted to be an ordinary looking girl. The years goes by and thankfully the box have disappeared. I was able to wear the hearing aids behind the ears hiding them with my long hair.    I still do this and will probably carry on for the rest of my life.  People tell me to have my hair up and show them.  I couldn't do it.  I just happen to think that the ears shape are not very attractive to look at.  

I remember when I used my deafness to get what I wanted.  For example, I went to see Scissor Sisters concert and I had a ticket  with seat that goes way back, way from the stage. Unable to make out what was happening or what the singer was singing. I was thinking how much the ticket actually cost me just to enjoy something that i can't make out what was happening.  I decided to do something about it. I saw the staff and explained that I am "deaf"  (I quoted deaf coz its the only way people understand, but I define myself "hard of hearing") . I said to him "I am deaf and I can't hear what is going on. I need to lipsread them to follow".  so what did the staff do?   He let me go right at the front row just by the vip area. :)   I was able to follow everything that was being said. It was awesome.    

Looking back, I think I have done well with what I have used with my hearing aids.  Make the best  out  of it and trained the brain to listen whatever possible.  

The most important lesson is..............  Never give up.